Saturday

Today went ok. His color still isn't my favorite. I still think he sorta looks like the kid from Pet Cemetary, after he came back. I suppose that is not funny but that is my impression. I want to continue to thank everyone for all the support. Thank you Zena for sending dinner down to the hospital and the toys. You really brightened Gary's afternoon. There are a lot of thank you's to throw out there, they really are endless. You know who you are! Thank you thank you thank you.

Gary did alright today. He is very stiff and not moving around much at all. The only improvement I can report is being able to step up little ledges. That is it. That's it. His swallowing is not improving whatsoever yet. We have had a ng tube for almost two weeks now. I know he is not improving because we didn't noticed that he reaching for something at dinner and I looked over to see him gagging on a little potato salad. Turning colors, all the fun stuff. He woke up from his nap extremely agitated. He seemed to be having issues with saliva coming out his nose which was making him uncomfortable. He also has been having hive like rashes pop in that he itches while his skin turns purple at the same time. Each day that goes by seems like an eternity to me. He seems really uncomfortable a lot. More than he is just doing fine. The doctors said his levels are heading in the right direction. That's great! Now when is his body going to catch his levels. He seems so fragile. When we pick him up, its like picking up a boiled chicken. I feel like he is going to break into mush and crumble into intensive care or something. My little prince sleeps tonight. He sleeps in the pink cloud of benadryl.