Sunday, June 7, 2009

The Day After

We can sure tell that Gary had steroids on Friday. He has been having the usual reaction. He gets very upset one minute and then is ok the next. His pain seems to have increased. He hasn't been walking as much as he usually does. There is also increased arm and neck weakness. His rash is looking really good. Almost gone. They did say that is what steroids will do that. They can wipe the rash out with steroids. It is just contending with the side effects. Our next appointment is on Thursday for his next infusion. Hopefully the weakness will level out and we won't need to go in before that. He is having trouble getting comfortable. I can't get use to him saying owie owie all the time. I can't imagine what is going on in his two year old mind. He was up a lot last night. He complained of his back hurting. This was with his regular dose of Naproxen and Benedryl. You know as an adult that if your pain reliever won't let you sleep thru the night then it is not working the way it should. I was worried last night that he might be getting a cold. He sounded congested with some post nasal drip. Mostly likely contributed to his lack of sleep. I am not going to worry about a cold just yet. I have read that kids with jdm get sick too. Sure there is the chance it could develop into something but we won't jump into conclusions. That would be silly.

1 comment:

  1. Gary,
    We are praying for you and your family! Keep fighting and be strong. Things will get better! I remember the days of IV Infusions for 3 days straight every week! Just remember it will make you better. Kya didn't believe me either when I told her that, but she ran across the stage Saturday after doing 3 routines at the dance recital and got her trophy from Cinderella at 10:30 at night. We will be following your story and praying for you daily! Mom and dad hang in there. Be thankful for everything all your kids do each day! We are with you on this mission. If you need anything you know how to contact me!