Monday, June 15, 2009

What a day...

It has been a long day. The tube is in. It wasn't as bad as I thought but still not fun. We just got done replacing a blown IV. They found a vein on the inside of his wrist. He had a hard time getting use to the feeding tube. I asked for them to give him tylenol to help with take the edge off. The nurse told me that older children tell them it feels very odd and itchy on the back of the throat. The doctors said we need to give his muscles a rest right now until we can get things turned around. We will be going home with it. That means this weak I will be learning how to place it and feed him through ect,. And I thought having to give him a shot was bad. The best part is that the doctors wrote permission for us to have the occasional pleasure foods. Gary had strawberry ice cream. It took him awhile to get him to take eat it but he sure loved it. The IV team made a comment on how good he is about not being combative during IV placement. I told them it is because he does not have the strength to fight. They said we will get to go home by Friday? We are going to see occupational therapy probably tomorrow. He will continue to get his regular doses of steroids and be monitered with everything else. I am shooting for Wednesday. Robert went home tonight and the kids were so thrilled to see him! *tears* I miss them too! No fair. Elexis is feeling better! PRAISE Him.


  1. Wow!Such a lot for you to endure. We are praying.

  2. I am praying for you guys! Hang in there Gary. You are such a tough little boy. I know that your mama will make sure that you have the best care possible! Kya said a prayer for you tonight. She prayed that you would have no more owies! Erika stay strong and know that God is guiding you every step of the way. I hope you find the answers and peace that you need quickly!