Unfortunatley, after a swim last night his NG tube came out. Just like that. For the first time! Just came right out. The family all got into there positions. Gary on Uncle Bill's lap, Daddy holds hands and keeps his head still. The kids behind us watching. Oh yes, we can't forget Auntie Alyssa. Runs and hides in a corner, rocking back and forth in a fetal position till it is all over. I don't blame her. But it went in, at first I didn't think it was going to go, but gently pushing so it finds it way down. He looked so much better with it out I was tempted to leave it out! Everyone was having anxiety about getting it back in so we didn't waste too much time. We needed to get it over with. Our next overnight infusion is on Friday. We have our appointment at 4. Hopefully this will be our last weekly infusion. There is a meeting on Thursday to discuss what will be done from this point as far as where to go with treatment from this point.
Tuesday, July 28, 2009
Melting in the sun
Wow, its hot! Gary and the kids have been hanging in the pool quite a bit. We just have to be careful not to get Gary's face wet.
We went to our church picnic. We all had so much fun. Our church family surrounded us. I could tell Gary was happy to see everyone. I love how Gary seems to know that he is very much loved. He is happy to return that love with hugs. Of course he watches and does as we do, hugging, shaking hands, ect,. But some kids won't do that. I am just glad he embraces that love in his two year old way. It was so good to see everybody and not be in the hospital for once. Praise God.
My Uncle Tom stopped by yesterday. It has been awhile since we have seen him so it was a pleasant surprise. Uncle Tom, if you find your way to our blog, we love and miss you so much. We will be praying for your diabetes and your familys health.