So far we are having a terrific week. In so many ways! We are busy getting all geared up for Chicago. God has been busy sending blessings and blessings our way. It truly is crazy and amazing. If I could put a color to how it makes me feel, it would be that bright white yellow color. Some dear friends from Solid Rock stopped by with a bag of blessings for the plane ride. My heart could truly burst. In the mean time, Gary is doing so good. Really. We have had a tremendous week. He is starting to do things he hasn't done in since May. He is doing bigger steps, with effort of course but considering he couldn't get off the couch. He actually bent over and picked up a ball of the ground tonight. MY OH MY OH MY! I swear I could hear Dave Niehaus yelling! We are starting to try foods that are a bit more challenging, scary, yes, but necessary. Gary ate a banana, and a few other things. The whole trying to eat actual food thing is nerve wracking but like I said, need to find out what this boy can eat. It does involve choking episodes which traumatizes me. Then I don't give him anything for awhile. I did call and ask for another swallow study to be done, just to see where we are truly at. I am not sure if that will be done before or after Chicago. We are suppose to check in for another infusion at the end of the week. Still waiting to here which day that is.
If you email or post comments to me and I don't say anything back, I really want to and I mean to. Sometimes I do in my head but then don't get a chance to actually sit down and type it. And if I forget, thank you thank you thank you!