Gary's Mission

Welcome to Gary's Mission to Remission! Juvenile Dermatomyositis, a rare autoimmune disease.

Sunday, April 24, 2011

Make-A-Wish Foundation: A wish comes true for a Black Diamond boy | Slide Show

Make-A-Wish Foundation: A wish comes true for a Black Diamond boy | Slide Show
Posted by Erika Bradford at 8:01 AM

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Welcome to our blog.....

At the age of 2, Gary was diagnosed with juvenile dermatomyositis, a rare autoimmune disease. Gary has been taking many different medications for 10 plus years to control his disease. There is no cure. Click here to go to the beginning.

Age 12

Age 12

September 2019

September 2019

Past Infusion

Past Infusion

Gary, Age 7

Gary, Age 7



AUSTIN MARATHON FEB. 14th, 2010

Our Family

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Make-A-Wish Foundation

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      • Rituxan Again
      • Clinic April Appt.
      • More for recording purposes..
      • Putting it all Together
      • Make-A-Wish Foundation: A wish comes true for a Bl...
      • Infusion: Really need to look back and get the co...
      • And his wish is complete!!
      • Appointment *Shrug*
      • Yay! Our appointment is here & other business.
      • Famous JDM
      • Appointment Moved Up
      • Make A Wish Weekend: Closer, closer, almost there!
      • Pamidronate Infusion Complete
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Friends

Cure JM Concert for Mason

  • In Loving Memory of Dustin
  • SEPT 11, 2010 HILLSBORO, OR
  • Mason's Battle

In Memory

  • Cole Age 15
  • Casey Age 19
  • Michael Age 2

Children's Hospital in Seattle

  • Donate

Current Medications

09/15/15
8 mg Prednisolone 1 x per day
15mg Diltiazem 2 x per day
325mg Ferrerous Sulfate 2 x per day






Bi-Monthly Infusions of: Methopred, Tocimizlab
IVIG


Past Medications and Treatments:
Miralax, Naproxen, Mupirocin Ointment, Bactrum Ointment, Cimetidine, Hyroxyzine, Nystatin, Lanzoprosal, Fluconazole, Magnesium/Protein, Enbrel, CellCept, Tacrolimus, Diphenoxylate, Remicade, Pamidronate, Triple Antibiotic Therapy, Cytoxan, Enalapril , Cetirizine, Rituxan, Ranidadine, Colcrys, Multivitamin, Sodium Thiosulfate, Orencia, Pamidronate, Plaquienal, Amlimodipine, Methotrexate, Wound Care: Mepilex

LEVELS

So I am going to attempt to keep track of Gary's levels on here. The words will appropriately be the color RED. I know, gross.

Normal Ranges in the Chemistry of BLOOD :)

ALT 5-40
AST 5-41
CPK 24-170
LDH 35-230
ALD 3.3-9.7
YELLOW = HIGH
BLUE = LOW




This months levels 3/11/12:

ALT 66
AST 155
CPK
LDH 547
ALD 11

Levels 10/14/11:

ALT 16
AST 48
CPK 51
LDH 799
ALD


Levels 9/17/11:

ALT 12
AST 39
CPK 46
LDH 682
ALD 5

Levels 7/20/11:

ALT 16
AST 41
CPK 56
LDH 775
ALD 8



Levels 5/20/11:

ALT 18
AST 49
CPK 80
LDH 838
ALD

Levels 4/21/11:

ALT 23
AST 39
CPK 32
LDH 710
ALD 10

Levels 3/16/11:

ALT 19
AST 37
CPK 29
LDH 709
ALD 8

Levels 7/14/10:

ALT 18
AST 47
CPK 0.3
LDH 823
ALD 7

Levels 4/17/10:

ALT 6
AST 43
CPK 29
LDH 852
ALD 6

Levels 10/9/09:

ALT 25
AST 44
CPK
LDH 1064
ALD

Levels 9/8/09:

ALT 23
AST 44

LDH 1203
ALD 10

Levels 8/31/09:

ALT 25
AST 46

LDH 1094
ALD 9


Levels 8/24/09:

ALT 29
AST 52

LDH 1035
ALD 8

Levels 8/17/09:

ALT 21
AST 50

LDH 1028
ALD 9

Levels 8/10/09:

ALT 23
AST 60
CPK 21
LDH 1310
ALD 22

Levels weeks after diagnosis 5/29/09:

ALT 54
AST 198
CPK 850
LDH 2191
ALD 21

About Me

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Erika Bradford
I am a mother of 3. McGuire is 20, Elexis is 17, and Gary is 12. I have been married for 21 years to Robert.
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Webfetti.com

Najwa Mansour, Kathy Voorhees, Paula Gausepohl, Joyce Harris

In Loving Memory

In Loving Memory
Justin Brubaker

How strong is the sun today? JDM kids are very sensitive to the SUN.


March 2009 BEFORE

July 2009 AFTER

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