Oh being patient is so hard sometimes.
Especially when it comes to your child having Juvenile Dermatomyositis.
I will have small issues that nag me and nag me. Like my shoulder will actually ache because I need to know. I need to know why his eyes are puffy. Nothing dramatic. Nothing crazy. But enough for me to notice. It's a symptom. Facial swelling is part of the disease. It almost looks like the inside of his eye is a bit irritated. Slightly bloodshot eyes but nothing that requires an emergency helicopter 911 flight. It was happening last month when we decided to do the Rituxan. Like my previous post says, we have to wait to let the Rituxan work. What if I don't want too? I want it gone now. I want to start tapering. Insert kicking legs and wild arms.
So I found this video the cutest little girl on how to have a tantrum. Maybe I will follow it like as exercise video.
Ericka,
ReplyDeleteHey pretty girl,
I am with ya on the tantrum I wanna do that too! LOL....
Hang in there chicka and I pray hard hard that the new med starts working and no side effects
xoxo
Summer :0)