Gary's Mission: : )...........

Sunday, January 31, 2010

: )...........

CureJM Video with a beautiful boy in it!

2 comments:

SummerJanuary 31, 2010 at 4:24 PM
I cried ALOT when I watched this video!! I seen Gary in it such a cutie! Thanks so much for spreading the word! I spread it all the time and am going to be giving a donation to JM soon!
I hope they find a cure for us all! This disease it stinks! Your family is sooo strong and Gary is such a trooper!
I am so glad I found your blog! Your family is an inspiration to me too!
Oh I hope you don't mind but I am going to post this video on my blog to raise awareness too!
xoxo
Summer :0)
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SummerFebruary 6, 2010 at 8:39 AM
Hey girl I left you something over at my blog!
Thanks for always brightening my day
Summer :0)
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Current Medications

09/15/15

8 mg Prednisolone 1 x per day

15mg Diltiazem 2 x per day

325mg Ferrerous Sulfate 2 x per day

Bi-Monthly Infusions of: Methopred, Tocimizlab

IVIG

Past Medications and Treatments:

Miralax, Naproxen, Mupirocin Ointment, Bactrum Ointment, Cimetidine, Hyroxyzine, Nystatin, Lanzoprosal, Fluconazole, Magnesium/Protein, Enbrel, CellCept, Tacrolimus, Diphenoxylate, Remicade, Pamidronate, Triple Antibiotic Therapy, Cytoxan, Enalapril , Cetirizine, Rituxan, Ranidadine, Colcrys, Multivitamin, Sodium Thiosulfate, Orencia, Pamidronate, Plaquienal, Amlimodipine, Methotrexate, Wound Care: Mepilex

LEVELS

So I am going to attempt to keep track of Gary's levels on here. The words will appropriately be the color RED. I know, gross.

Normal Ranges in the Chemistry of BLOOD :)

ALT 5-40
AST 5-41
CPK 24-170
LDH 35-230
ALD 3.3-9.7
YELLOW = HIGH
BLUE = LOW

This months levels 3/11/12:

ALT 66

AST 155

CPK

LDH 547

ALD 11

Levels 10/14/11:

ALT 16

AST 48

CPK 51

LDH 799

ALD

Levels 9/17/11:

ALT 12

AST 39

CPK 46

LDH 682

ALD 5

Levels 7/20/11:

ALT 16

AST 41

CPK 56

LDH 775

ALD 8

Levels 5/20/11:

ALT 18

AST 49

CPK 80

LDH 838

ALD

Levels 4/21/11:

ALT 23

AST 39

CPK 32

LDH 710

ALD 10

Levels 3/16/11:

ALT 19

AST 37

CPK 29

LDH 709

ALD 8

Levels 7/14/10:

ALT 18

AST 47

CPK 0.3

LDH 823

ALD 7

Levels 4/17/10:

ALT 6

AST 43

CPK 29

LDH 852

ALD 6

Levels 10/9/09:

ALT 25
AST 44
CPK
LDH 1064
ALD

Levels 9/8/09:

ALT 23
AST 44

LDH 1203
ALD 10

Levels 8/31/09:

ALT 25
AST 46

LDH 1094
ALD 9

Levels 8/24/09:

ALT 29
AST 52

LDH 1035
ALD 8

Levels 8/17/09:

ALT 21
AST 50

LDH 1028
ALD 9

Levels 8/10/09:

ALT 23
AST 60
CPK 21
LDH 1310
ALD 22

Levels weeks after diagnosis 5/29/09:

ALT 54
AST 198
CPK 850
LDH 2191
ALD 21