Sunday, February 7, 2010

It's almost here!

We leave Tuesday for Austin.  Our family is very very excited.  We are going planes, trains and automobile style.  Before we go though, we have an infusion tomorrow ; ( .   Gary is doing pretty well.  I could say he is stable.  No new or worsening symptoms, just seems to have leveled out.  He is still has become a bit unsure of his balance at times.  He has fallen more than once this past week.  But as always, its the fine line.  Is it because is he toddler or does he have some weakness.  I know he has some weakness.  I can see it and feel it.  His skin is better than it has been.  I am a little apprehensive because we leave on Tuesday at 6:15pm.  He won't get much down time to recover from his IVIG and steroid infusion.  I have a feeling though he will be just fine.  We are heading down to Portland on Amtrak to catch a 6am flight to Austin so hopefully it will be more of a distraction for him.  PRAYING.   We have a few days to explore.  I am staying off my feet right now.  I did a quick 2 mile warm-up this morning, but other than that I am saving it for the marathon.  I run Sunday, Feb. 14th.   I will try and keep you updated to let everyone know how it went.  I admit, I am a bit nervous.  I don't know why, I just am.

If you haven't had a chance to donate, there is still time : ) .  I put a new video up on my fundraising page.  All the cool JDM families were doing it, so I did one too! THANK YOU to everyone who donated to the cause.  I still can't get over how amazing you all are.  DONATE HERE


  1. Hey Erika I am so excited for you! I will be waiting at the finish line with a bottle of water just for you!!! I am glad that Gary is remaining stable and that things are going OK. Sounds like your family is ready for a fun week of travel! We will be praying for you and will see you in Austin!

  2. How exciting! Austin....I know girly you will do sooo well! That is super AWESOME that you are running for Gary and all of us who want and need a cure!
    I am so glad we have become "bloggy friends"!!
    I left you something over at my blog!!

    Glad Gary is doing beter!! I am flaring AGAIN and my muscle weakness is back and joints swollen....yucky and they upped my steroids AGAIN....I know you can relate all to well on this one....
    Gary is such a sweetie....
    Have a Happy Monday
    Summer :0)