We leave Tuesday for Austin. Our family is very very excited. We are going planes, trains and automobile style. Before we go though, we have an infusion tomorrow ; ( . Gary is doing pretty well. I could say he is stable. No new or worsening symptoms, just seems to have leveled out. He is still has become a bit unsure of his balance at times. He has fallen more than once this past week. But as always, its the fine line. Is it because is he toddler or does he have some weakness. I know he has some weakness. I can see it and feel it. His skin is better than it has been. I am a little apprehensive because we leave on Tuesday at 6:15pm. He won't get much down time to recover from his IVIG and steroid infusion. I have a feeling though he will be just fine. We are heading down to Portland on Amtrak to catch a 6am flight to Austin so hopefully it will be more of a distraction for him. PRAYING. We have a few days to explore. I am staying off my feet right now. I did a quick 2 mile warm-up this morning, but other than that I am saving it for the marathon. I run Sunday, Feb. 14th. I will try and keep you updated to let everyone know how it went. I admit, I am a bit nervous. I don't know why, I just am.
If you haven't had a chance to donate, there is still time : ) . I put a new video up on my fundraising page. All the cool JDM families were doing it, so I did one too! THANK YOU to everyone who donated to the cause. I still can't get over how amazing you all are. DONATE HERE