Thursday, August 19, 2010

I'm better......

So I have calmed down a bit about the whole calcinosis  issue.  I had posted about it on the Cure JM board, then took it down for reasons I don't know.  Yes,  I can be bratty.  No one responded to it so I figured no one had anything to say about it.   I know.  This is me being transparent and honest.  I have the support on my blog so when Summer, Jenn, and Kaylee dropped me a note, I felt better.  Then someone on the board message me about the post, I felt even better.  Thank you Catherine.  She explained her son has calcinosis as well and what he has been going thru.  I suppose that is all I wanted.  Then the best sentence I read from Shari, calcinosis can resolve on its own.  So that is good and I will cling to it.

CURE JM is in second place.  We need every vote everyday.  Please keep voting.   Yay!!!

Special prayers to a family who lost there son to JDM last night.  My sincerest condolences.  He was 15.  

2 comments:

  1. You are not being bratty sweet girl you are being a concerned parent who sometimes needs to hear from other people who go through it....I get the same way I worry about something and then when I hear from you or Madelines mommy or Kya's mommy I feel better....this DM stinks....it is hard to figure out, not all symptoms are the same....crazy....did I tell you that with all the bloodwork and research JHU says I have more characteristic makeup of JDM them DM and I am 32 another baffeling discovery....I always knew I was different but geezy peezy....

    I have also been one to know that calcinosis does resolve itself in time....my one finger was pretty bad with it and now it is pretty much subsided so I do believe in my heart Gary's will subside as well...

    I vote EVERYDAY for JM and I bug everyone I know to and I am hoping they win....it is at #4 right.....EVERYONE VOTE.....Paaaaaalllllllllllleeeeeeeeeeeeeeeeeeeaaaaaaaaaaaaaaaaaaaassssssssssssssseeeeeeeeeeeeeeee

    OK that was my extreme pouty face whiney voice....

    How sad that he passed away....who was it? They are in my prayers....so sad.....

    This disease stinks....it needs to go away it is not welcome here.....

    love you
    Summer

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  2. Hey Girl! We all have our bratty pouty concerned run in circles scream and shout days!!! That is why we have blogs and message boards and a wonderful JM cyber family. I pray that his calcinosis gets better daily. You are my inspiration and you are a wonderful mama! I heard about Cole last night. But it hit me really hard this morning driving to work. Hang in there mama tiger!

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