The rheumatologists and the dermatologists have decided to increase a few of Gary's medications. He is going up on Cell Cept, Plaquinel, and Methotrexate. Hopefully this will be the magic combination. Gary is doing VERY WELL right now because he was just pulsed with steroids. He is like my little super boy! His strength, his skin are great. IV steroids really seem to do the trick. Last month was the same way. We sha2ll see what he does this month. If his skin stays quiet and strength stays good, then great! I will feel like we are putting some smoldering disease out. The one thing I felt encouraged about was that his current rash is not from sun exposure. Why do I feel that way? I guess because I know its not something I am doing or am not doing to contribute. In the summer time, I always felt anxious while he played in the yard, even under cover. I know there are still UV rays in the winter but we really don't spend enough time out there. I could tell if it was summer time the dermatologists really wanted to point
My Conclusion
Gary's levels came back great. But physically his levels are not an indication of those levels. So if you are a fellow JDM patient, and I know my friend Summer can testify to this, it doesn't mean all is well! The next doctor that does a little cheer leader cheer at me when his levels come back good, yeah. Cute.
I know he will kill me when he is older for posting this, but I just couldn't help myself.
My baby boy rocken his scooby doo's waiting for the dermatologist.
LOL about him rockin his Scooby Doo's! You should so show that pic to his girlfriend when he is 16 Ha! Ha! He is such a cutie....
ReplyDeleteI am glad the Steroid Pulse is doing the trick, they too just upped my Steroids 'cause my muscle weakness and rash came back also and now I am starting to feel better....
Girl keep on those docs, ya have to.... I am so proof that your blood levels can look o.k. but your disease can be active, this crazy disease has it's way of masking itself....
Gary is so lucky to have a Mommy as vigilent as you.... Yes I broke out the big word and spelled it wrong...LOL oh well....
Hang in there....
xoxo
Summer
keeping you in our prayers
ReplyDeleteI am glad to see that you had a great week. It is good to hear you so upbeat as well. Training for your upcoming Texas adventure is working. I just hope it warms up out there for you in the next few weeks too.
ReplyDeleteYour family is in my thoughts and prayers as always............