Wow, I can hardly believe that the month is up. We are due in on Friday for Cytoxan and IVIG. It was a good month. My only complaints are some skin activity we have been dealing with especially at night. I started him back on benadryl at night time because if I don't he itches and tosses and turns all night long. He rarely does well when waking up from a nap. He wakes up with swollen lips and fingers that are red and splotchy screaming for a good hour. What does it all mean? I don't know. It means its better than muscle weakness? Does it mean we are just keeping things quiet? Does it mean if he were not on all these medicines he would not be in good shape. Who knows. I like that we have or are starting to get use to things. We are finding Gary's normal. We are finally accepting it, if that is at all possible. We are just thankful. Thankful because without God's protection and blessings, I can't even try to go there. We still have our swords drawn against the swine flu. The Halloween party was impossible. I thought I would be clever and send Gary away from his all the germs. He was heart broken and ended up dancing the night away. A friend reminded me that I must put my faith in God. Let him be as normal as possible. So true.
So Halloween is over (Yes! I only like halloween but I love Christmas), Christmas is coming SOON! Yes, it is snowing on our blog. We are getting ready to decorate. Music coming soon as well. No! It's not too early!
Good luck on his IVG treatment coming up! Will say a prayer for ya'll! Oh poor guy witht the skin stuff! I sooo know how that feels! Yucky! When I was first diagnosed with DM I told a friend I just wanted to get back to normal and she said "What is normal?, everyone has something and at this time this is your normal!" I am happy to see ya'll have found your normal! We may not like our normal but it's our life right now!
ReplyDeleteI am soooo loving the snow on your blog! Yay for Christmas!
Summer :0)
Good morning Erika,
ReplyDeleteI have had a busy month too, and am just now checking the blog after a few week absence. Glad to hear all is progressing well. Robert told me this morning that your over nighter is coming up and, I will definitley pray all goes well and that you find some answers to your questions on the skin condition and swollen lips. If I have not done so before, let me share something with you that might help. There is a verse in Proverbs that always helps me. It is in chapter " a merry heart does good like medicine. However a broken spirit dries the bones" It is good to hear that he danced the night away and hopefully he enjoyed that. Keep on smiling and trusting, and He will protect your hearts and minds.
I will be up in Seattle next week on Thursday and would love to have a chance to meet you, Gary, and the rest of the family if it works out. Check with Robert and either message me on facebook or I can talk with him at work next week.
I LOVE SNOW!!!
Glad Gary is doing good. I was in Las Vegas when I got your email about the meds. It takes a lot to make sure everything is dosed up properly and given. Don't beat yourself up we have all done that before! That is why I now take a day and draw up a weeks worth of meds when I have no other distractions.
ReplyDeleteWe are still praying for you and your family! Hang in there mama tiger! We are ready for Christmas also. I want Lake to put up CHristmas lights tomorrow because it is suppose to be 80 degrees, but I don't think it will happen. We will do it in the freezing cold on a majorly windy day! It is tradition!