Wow, I can hardly believe that the month is up. We are due in on Friday for Cytoxan and IVIG. It was a good month. My only complaints are some skin activity we have been dealing with especially at night. I started him back on benadryl at night time because if I don't he itches and tosses and turns all night long. He rarely does well when waking up from a nap. He wakes up with swollen lips and fingers that are red and splotchy screaming for a good hour. What does it all mean? I don't know. It means its better than muscle weakness? Does it mean we are just keeping things quiet? Does it mean if he were not on all these medicines he would not be in good shape. Who knows. I like that we have or are starting to get use to things. We are finding Gary's normal. We are finally accepting it, if that is at all possible. We are just thankful. Thankful because without God's protection and blessings, I can't even try to go there. We still have our swords drawn against the swine flu. The Halloween party was impossible. I thought I would be clever and send Gary away from his all the germs. He was heart broken and ended up dancing the night away. A friend reminded me that I must put my faith in God. Let him be as normal as possible. So true.
So Halloween is over (Yes! I only like halloween but I love Christmas), Christmas is coming SOON! Yes, it is snowing on our blog. We are getting ready to decorate. Music coming soon as well. No! It's not too early!