Thank you Summer and friends for all the nice comments!
Today is the day. I would love to get it over with but I know Gary will not feel the same. I would not to start or end my day with two shots. I will be watching the step by step several times. Enbrel was delivered on ice in a big cooler. Never had a delivery like that before. We were able to get the co-pay covered thru Enbrel for six months. It was a lot of chasing but worth it. I am nervous to give this one only because the needle is bigger. The pharmacy at Children's used a small gauge needle. This one is clearly bigger. Stinks.
Gary has been doing better. Our latest battle is he is always hungry but will not eat. Well, he will if it is the right thing like a donut or tuna fish. But that's it. He keeps crying at night he is so hungry but if it is not a particular way or kind, then he will continue to cry. Argggghhh. I tend to think this is a normal kind of thing for kids but with all the medications his seems to be magnified. I am thinking of getting him to drink on of the kid protein shakes before bed time. See if that helps. His new thing is to throw up his medicines. I always yell, please please don't. Poor buddy. But he has mastered gagging. I wondered when he would catch on. He is getting older and wiser now. Darn it. I gotta find some new tricks!
Another problem I have been keeping an eye on is potty time. He has been complaining about going number one : ( Eeeekkksss. I have a feeling he may have scratched it causing it to sting? I don't have that particular part so I am not sure. Keeping a very close eye on it. I have heard horror stories of kids on immune suppression with urinary tract infections and things like that. Hmmm. Maybe I will get him in, even if it is just a scratch. He doesn't complain all that time though.
Yesterday his eyes were very heliotrope looking. Like my new tech term for a JDM rash? Talent.