Wednesday Clinic Appointment

We have an appointment this Wednesday.  Gary is doing really good.  The Rituxan treatment he had in December seems to be kicking in nicely.  I assume this Wednesday we will try and continue the steroid taper.  We are only on 1ml as it is but I approve tapering completely off.  Gary's toes are still crossing but we will have that checked out on Wednesday.  He constantly complains of his ankle hurting.  However, he runs, jumps, and plays on it with no problem, except for "owe" my ankle hurts.  Dr. Mom, (thats me) is a little suspicious with the crossing toes and ankle pain.  He also has the occasional knee pain.  As far as disease activity, I am pleased.  But I think the pain, funny looking toes, funny looking ankles and knees make me think calcinosis.  I am hoping it is not played off or ignored on Wednesday.  I need to be on my Mom game.  I would like him to be evaluated for............ummmm.......I DONT KNOW JUST FIX IT.   Ha ha  think I have been feeling that way for almost 2 years now.  If it is calcinosis in his joints, I am not sure they can do anything for him.  I just hope it doesn't get debilitating effecting the way he walks.  At this point we are far from that.  He runs runs and runs just fine.  It's mostly when he is standing and goes to make a small shift in weight he says, "owe my ankle".  The other day he came over to me and said, "pop! and pointed to his ankle."    It could be something is tight, and alls we need is a little physical therapy.  Hopefully we will get answers or recommendations on Wednesday.  I made sure as soon as pay day hit,  we went right to Nordstroms and bought him a pair on good shoes.  I didn't care how much they were going to be.  I have always been fond of the Stride Rites for toddlers so we got him a pair of those.  They have plenty of room in toe box.

Calcinosis
Good news I think in that part of his world.  It has not increased in size.  He did get a few new ones in his bottom area and on the back of his knees, but other than that the other sites of calcinosis have not changed.  They one on his arm has significantly decreased in sized and the inflammation around it is gone.  I was very happy about that.  I thought for sure that it was going to burst through is skin.  It's encouraging.

DENTIST
So he does have a few cavities : (  But they are shallow.  He did an excellent job at the dentist.  Surprisingly cooperative!  They are going to fill the cavities at the end of the month.  Give him a little gas and see if we can take care of those without having to drill to deep.



Make-A-Wish

It's happening.  It's finally happening.  Our family is so excited.  Gary is so excited.  In a few short weeks, Gary will be happily playing on his sun safe Rainbow Play System!  I will be inviting the world to his dedication party in April!   The volunteers are amazing!  They worked all Saturday in the rain.  Our Make-A-Wish Go-To Gal was there the entire day.  She brought donuts and sandwhiches, even fed our family.  I pray God Blesses these people 10 fold!  They deserve it.  I will keep everyone posted.  We have to pass a few inspections this week.  Then they are going to pour cement.  My backyard is a crazy muddy mess right now, but it is all good.  : )  No complaints here.

Gary was woken up early to find something magical happening in his backyard!

Make a wish my baby!

Birthday

Gary has a birthday coming up.  March 21, he will be four.  Wooops, I think I accidentally BLINKED!  He already received a gift.  His Uncle Ray and Aunt Amy signed him up for is first ever T-Ball Baseball team.  He literally glows from the inside when it is mentioned.  You can actually see heavens light surround his body in excitement when he says, "my team Mom?".   Absolute beauty!  In honor of baseball season I changed his blog to baseball.  His big brother McGuire is also playing on the team his Daddy is coaching.  Elexis will be doing cheer leading as well.  Single income.  Gulp.  God is good and he knows what we need : ).   . .   .