Things went smoothly yesterday. A Child Life Specialist met us in the infusion center to help with Gary getting the IV. Gary had the usual same amount of anxiety. It has been mounting in intensity however. This time, Gary tried to get himself to "throw up" during the IV start. He looked very red. It's like he is working on turning himself inside out. They missed the vein the first time. But a nurse that has done countless IV starts on him came to the rescue and put that needle in a gusher. The Child Life Specialist helped with Gary's anxiety prior to the procedure. She distracted him with giving a Teddy Bear an IV. We have done that before but I didn't mind return to old trix. Making the actual procedure go without tears, fears, and anxiety is just impossible. I don't think at this point it will come without tears. She told me its a natural reaction. I completely understand that. It is not completely natural or normal for him to have a disease that requires this treatment. Sitting in the infusion clinic all day, I get to hear the "natural reactions" to different procedures. Getting around them is just impossible. Trying to make it easier is what I am after. Since I am seeking, than I shall find?
We are waiting to hear if Gary is therapeutic with the dose his new medicine he started. His levels as far as JDM are still holding. He still has a elevated AST level of 51. Calcinosis, still there but staying put. I try not to sit hear and hold my breathe waiting for the next flare. I'd rather go running. Run those feeling out.