Sunday, June 3, 2012

Finally

He looks so much better.  Things are kicking in!  Yes.  On Thursday we had our 500mgs of methoprednisone followed by a dental procedure.  It started with the standard, nothing by mouth, so naturally that was the night before.  I was so thankful to have my sister with me.  They let me carry him back went it was time.  He had fallen asleep waiting on them.  So he woke up to going into the surgical room.  I was in the gear they give you to simply enter the room.  He was most displeased with the fact I had on a surgical hat.  But soon none of that matter because he was snoring again.  They fixed his cavities, cleaned his teeth, and scoped his throat.  The scope was on order from the voice doctor who asked the next time Gary was put under, he wanted a peak.  Here is what he found:
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I know ewww.
But this is what they are suppose to look like:
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They are suppose to be thin and white.  I know my friend Summer has struggled with the same thing.  The hoarse voice.  What to do about it.  The doctor explained if this was Gary's only concern we would inject steroids right into the vocal cord.  Gary, however, has much more to deal with.  He wants him to start voice therapy for now.  We hope it will get better with time and age but as long as JDM is at work, what is the point.  Least of our worries I suppose.  What bothers me a little bit is his colon looked the same as the lesion looking vocal cord.

The great thing right now is he is feeling better.  Walking better.  Talking better, everything better.  I do have a fat lip from being head butted by him.  He thought a good wrestling move was a full on face slam.
Spent Friday night as Angelina Jolie.

9 comments:

  1. Girl my vocal cords look just like that! They called mine a retnoid fixation where when I have a flare one is paralized. They had ruled surgery out for they say they have to treat me like a kid since I have both JM and DM version and they are scared to operate and make it worse! Funny thing is steroids makes it go away, and then when I taper it comes back, crazy! I have been really hoarse and loosing my voice the past few days, I am on the great taper so I am holding off telling them hoping when the Methetrexate kicks in that I took Sat night that was upped and the Chemo/IVIG in two weeks will take care of it! I am sorry poor lil Gary has the same thing. You are wise to just let it be for now. It will correct itself hopefully it is just another hurdle is this stupid disease! Glad his teeth are taken care of and you found the culprit for the hoarse voice. I was figuring that was what it was for that is what I had went through all most exactly. Leaving it be was our decision as well! They didn't offer me steroids to the throat, but I would have opted out as well! Girl I bet you rocked it out like nobodies business looking like a blonde Angelina Jolie and I bet for sure you were hotter ha! :)

    love you
    take care and always in my prayers!

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  2. ps I am so glad he is feeling so much better! The steroid pulses will make you feel like a rockstar!!

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  3. Glad to hear things are kicking in!! Lol about the fat lip...enjoy it while it lasts. ;P

    Praying and praying,
    <><

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  4. Congratulations on your race yesterday and good luck to your son!

    Kim
    a friend of Summer's

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  5. Erika, I'm coming over here from Summer's blog to say hello. I can see from your posts that you are a loving and courageous mama. May you have all strength and grace as you love your family and fight for your brave boy. I'm praying for you all, today.

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  6. Erika~
    Praying for Gary that all goes well for him! Congrats on the race. You are a Super Mama!!!!May God bless your little one with healing and a special strength from heaven above. Keeping you and your family in my prayers!
    Praying in Illinois~
    Jamie Pennington

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  7. Hopping over from Summer's blog. I hope Gary is feeling better and I will keep him in my prayers. I love his playset from make a wish! I volunteer with them and they are so amazing!

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  8. hey pretty girl,
    you are one rock star momma u know that? Well you are, and Gary is beyond blessed to have you! Mason sure did pull you through that race yesterday, which makes you even more of a rockstar! I pray for that ladies heart who didn't give you a balloon, it makes me cry and makes my heart hurt! I am gonna get some red balloons in honor of Mason and send them to heaven! One will have your name on it! I pray all goes smooth sailing today! Tell my lil super hero, everything will be a o.k. and that he rocks! Tell the sticky ladies to be nice, and lets pray the staff are on the ball and nice today too! I love you girl! Keep me posted on how he is doing, and know as always I'm just a text, phone call, email, blog comment, or facebook away, gosh that's alot of typing lol, I type as much as I talk oh my lol!

    love you
    me

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  9. Hi Erika,
    Summer mentioned Gary will be having a port placed in soon. Just letting you know I will be praying. Lifting you all up during this sad and very trying time.

    <><

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