Heliotrope rash, and facial swelling. Some calcinosis had penetrated the skin on the back of his knee. It is showing signs and getting larger on his backside. They agreed. I don't why I felt relief and panic at the same time.
We had a clinic appointment set up for 215. We checked in at 1015. There was no way that was happen. So they accommodated and came to us. In walked our doctor who was out of town. I told her I was having a shcitt fit she wasn't there. Yes. Yes I did say that. I was just so relieved she was there! She examined him and said, "yes, he is flaring." Changes in capillaries in his fingers with so many other signs. We are going backup on our steroid which is only 1/2 ml but enough to make a difference. We are going to run rituxan again at the end of the week. Gary's labs came back fine. But he is still flaring.
The trip home was the pits. Awful. Traffic made our trip into a 2 1/2 hour ride. All's he wanted to do is lay down. He cried the whole way because he just wanted to sleep and couldn't. Side effects from IVIG seem to really be increasing. He nears vomiting and is so miserable. I feel terrible. I wish I could have pulled off, got a hotel, and tucked him in for the night. He would have loved that too. Would have been a good distraction. Getting him to our bed, not his, was on the menu though. I was close to just making him a bed on the back seat. Belt him in somehow. A new item to bring, pillows! My poor little bunny. I hate revisiting this. We need to stop this in its tracks or he is going to get full blown sick from it.
I still cry.
He recovered but has been tired. He was running with his brother and had to stop and grabbed his legs saying owe. Ugh.