Yesterday Gary was feeling much better. So much better that the pesky rash around his mouth and eyes is a lot better. It looks like it has faded. This is so great, and not so great in my mind. It is great it's better, but it is not so great that he actually needed it. I was really hoping he wouldn't. I am sure we will find out next week if he will continue to need pulses? He also didn't do any itching last night. He slept a bit better than usual last night. The night before was hard but he wasn't sleeping because of itching. He needed to hold his balloon. Every time the balloon slipped out of his hand, he woke back up freaking out for me to get the balloon. Steroids can make kids a little crazy. He is so cute. We were watching Calliou for the millionth time, but a new episode. This episode was about Calliou going to school. Calliou hugs his Mom good bye and goes to school. Gary turns around to mimic what he had just seen. Then BURSTS out crying at the thought of having to leave his Mommie. I had been entertaining the idea of getting a part time job again like I had before when Gary got sick. To help out with finances. Guess that won't be happening any time soon. I couldn't bare to put him through anything like that right now. He has to go thru enough.
Summer, thank you for your comments. I really love getting your point of view on everything. You are wonderful. I hope you feel better soon.