|Ring Bearer at Aunt Amy's wedding.|
The other new thing we tried was the infusion center. We were booked into a new infusion center which was off campus of Children's Hospital. We only had to go to Bellevue. I liked that is was closer, quieter, and new. I didn't like they didn't serve lunch. It didn't hit me until we pulled up. I am more than happy to pack a lunch for next time however. It was also nice because we had the place to ourselves which meant we almost got the nurses full attention. They were great. One of them sat with Gary while I went to get him food for lunch. They had a movie on demand system which was good, but once we got thru all the movies, he got restless. Of course he fell asleep at the end. For the first time in a year and half, after countless infusion, Gary did not wake up while having his IV removed. Sedation gripped him hard.
Last month I had asked for them to check his B cell count, to see if those cells responsible for inflammation were coming back yet. If they were, then Rituxan would be given again. They had explained it was still to early. I told them I wanted them checked because there was a overall inflammation I keep noticing in his hands, face, and skin. They went ahead a checked them this month. They are indeed back. So in a few weeks we will be getting another round of mice medicine. (I call it that because Rituxan has mice dna stuff in it. I know gack) .
Last year we made it thru the flu season with flying colors. Nothing. Gary did not really catch anything. This year is proving to be different. I wonder if it is because I am becoming a little more relaxed with his exposure or what. Nov. 13 he threw up and was sick. Recovered quickly. 3 days later another round of throwing up hit him. He once again, recovered quickly. Dec. 9th (Last night), he began throwing up again with tummy cramps. That makes a three peat. Hmmm. I did have a little run of it a few days after he did last month so I was sure it was a tummy bug. But 3 times now for him. The good news is he seems to recover quickly. Both times he has held down his important medicines so no hospital visits. I knew yesterday something was up. He was quiet and complained of a headache. He did the same thing last month as well. I few days before, I knew something was wrong or brewing because of his behavior. Poor little boo boo.