Friday, July 16, 2010

Clinic Appointment

Ladies and Gentleman, Welcome to the GREAT TAPER.

Labs are good.
Strength is good.
Skin is better than it has ever been in a year.

Our schedule includes the following.  Today we decrease the steroid to 2.0ml.  That is down from 2.5ml which was the start of the taper 4 weeks ago.  For one week he will stay at 2.  The next week we go down to 1.5ml.   Then the next down to 1ml.  She wants to see us back in 4 weeks to see how he is doing.  

I am not nervous this time.  I am some anxiety in the back of my head but I have a really good feeling about this.  I wanted to jump on top of Dr. E's head yesterday and wrap her in hug and scream, "finally!".  After a year and 2 months of aggressive treatment.  What a ride. Ok I admit.  If we happen to have a glich, my bubble may burst so I may be setting myself up for that but I have a lot of confidence in my bag.  I just have a really great feeling about this.  I know we have a long way to go before we party, but maybe a mini party?  My heart is doing a happy dance for the first time in over a year.  There was a little thing we are keeping an eye on but I am so not worried about it.  He does have a few funny feeling pebble like bumps in his chest.  We suspect calcinosis.  But there is nothing they can do for it if that is what it is.  It's not confirmed.  He is doing so well even if it is, we will deal with it.  The doctor asked if I was going to put him into preschool.  She said he certainly is physically ready.  She was encouraging though.  She expressed concern with him being immune suppressed but also realized he is ready to go as well.  I told her I am avoiding it because it is a hard decision for me.  Preschools are a breeding ground for colds and all sorts of ickies.   I have a few weeks to decide.  I don't know.   Gary is doing well and I want to keep it that way.

Yesterday I had NO FUN sitting in Seattle's traffic.  I will post more later about that.  I have pictures.  I wanted to share our scenery.

Ok I am off for the day.  A friend of the family lent me her bike for Sunday's race.  It's a speed bike.  I am a mountain bike girl so must practice.

1 comment:

  1. Erika,
    Eeeeeeeek this is fab news!! I am so glad ya'll got the go ahead from the dr. to start tapering! That is excellent and that means that Rituxan is working! Eeeeeek my heart is dancing a happy dance too! This is great news!

    Thanks for you super sweet note I cried....

    You are so welcome....I want to do all I can to help a few other of my dear bloggy friends have posted on their blogs too and I have told everyone I know and that ALOT LOL....ya know I have the gift of gab and all so hopefully this will come in handy!

    I wish there was a way to see how many votes there can only see ranking can't ya?

    Good luck with your bike riding....