Today is April 19, 2010. It was a year ago this day that the symptoms of Juvenile Dermatomyositis appeared. Someone needs to come up with some protocol on what to do with these anniversaries. I say celebrate. Not celebrating the fact its a rare autoimmune disease or all the hospital stays. I say celebrate we have made it thru it. I think I will get him a cupcake. Something that says, "good job baby, none of this is easy and you are so brave." We also have D Day. Diagnosis day. Yes! We will be celebrating both.
His lips felt funny because they were swollen so he kept flexing them.