Welcome to Gary's Mission to Remission! Juvenile Dermatomyositis, a rare autoimmune disease.
Sunday, May 1, 2011
Great Weekend
So Gary has been doing really good. He had a much better weekend then he did last weekend and this past week. His skin looks really good. So I am feeling better. He still has a hoarse voice but his energy and walking up the steps have improved over the past few days. Welcome to my roller coaster ride!!!!!!!!!!!!!!!!!! My husband and I agreed to watch him this week, see if he maintains his improvements. I wonder if his levels improved. Not sure it works that way but we are feeling a little better at least. I still think it is important to run the Rituxan again. I am assuming they want to do the infusion again because those b cells are back. If they are not back, depending on how he does this week, I would like to think its ok to hold off. But then again, what if its the good ol, its not what I can see, it's what I don't see. From Fear to Fun, back to fun then rear ended by fear again. What would you do?
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